I just received a request from the researcher to ask you again to help her. She has a thesis near completion, but would like more responses to her questionnaire.

Parents/Care givers of Children with Prader-Willi Syndrome (PWS)

Willonie Mendonca is a graduate student in the Genetic Counseling Program at Case Western Reserve University. She is working on a study to look at how behaviors of children with Prader Willi syndrome impact their parents/caregivers.

If you are a parent or caregiver of a child between the ages of 6-18 years of age, who has been diagnosed with PWS and would like to participate in this study, please contact me so that I may send you the study questionnaires.

Contact information is:

Willonie Mendonca, M.Sc.
Graduate student Genetic Counseling Program
Case Western Reserve University
Email: willonie.mendonca@case.edu
Phone: 216-368-1891.