President’s Letter from Michelle Torbert

Hello Florida Families,

Wow, is it hot out!! I hope you are all finding fun things to do to stay cool!

We have a date for our Fall Conference. It is October 15-16th, 2010 at the Regal Sun Resort in Lake Buena Vista, FL. Everyone needs to mark this date down and make every effort to attend. We are having 2 very special speakers, our wonderful Dr. Jennifer Miller from U of F. and Dr. Greg Cherpes from the Children’s Institute in Pittsburgh, PA will be  attending. He will be speaking to us about behaviors and we will have different break-out groups according to your children’s ages so everyone will have time with him for        questions.

Thank you to Jennifer Cheshire and her T Shirt fundraiser, Libby DeLemos for your fundraising, with Orlando Lutheran Academy, Lady Primrose Products and Rainbow Christian Academy, Shed your threads (the kids pay not to wear uniforms for the day)

Participation for our Skip a Lunch fundraiser was very poor this year. I appreciate the  families that did participate, however as large as our group is we had a very poor turnout. These fundraisers are the way we are able to bring in great speakers and give out conference grants. If you did not have a chance to participate and still wish to help, it is not too late! Send a letter out now to your family, friends and co-workers. If you need a sample or some help on how to do this, contact myself or Deb Peaton, debpeaton@tampabay.rr.com or 813-240-9267 and we will forward the information to you.

I wish all of you a safe, healthy and fun summer vacation and hope to see all of you in  October. As usual, if there is anything I can help you with, please do not hesitate to call me. I will be out of the country from August 14 – 26 and will have very limited access to e-mail, but if you need anything during that time you can contact your district leader or any board member.

Until next time,

Michelle Torbert                                                                                              

Reach me through my e-mail at   PWFA2007@aol.com. 

You can also reach me by phone at  305-245-6484.

SEE List of Skip a Lunch Participants under Support

PW Florida GRANTS for Meetings

PWFA  offers grants to families who want to attend
the conference but cannot afford the expense.
Applications should be made by letter, email,  or phone to the
President of PWFA -  Michelle Torbert - 305-245-6484—PWFA2007@aol.com

Application letters must include:

1.       The size of your family and age(s) of your child(ren)
2.  A brief summary of difficulties your family is experiencing in dealing with PWS.
3.  Whether your family would need all conference expenses paid or only some expenses (e.g. just transportation or lodging)
4.  Whether anyone in your family has attended a previous PWFA conference

All Members are invited to make a donation toward the Grant Fund

  Awareness

Skip a Lunch for Prader-Willi Syndrome

(click above to display printable form in pdf format)

 To help promote Prader-Willi Syndrome Awareness,

we are asking our friends and associations to donate

the cost of a lunch to the Prader-Willi Florida  Association. 

Your contributions are tax-deductible  

Please join us in this crucial fundraising effort. 

 So we can continue to offer support and awareness for all new and old families
 

Name_______________________________

Address ______________________________

Date: ________________  Amount enclosed ____________

Please send to: 

PWFA, 17777 SW 285th Street,  Homestead, Fl 33030

Thank you very much for your support

We are a  501(c)(3) charitable organization) and all funds are used to help provide information, family advocacy and parent-to-parent support activities.